How to Deal and Heal for those with Rare Chronic Illness like EDSTired of being told there’s no name or treatment for your illness? That it’s all in your head or that your pain can’t be real because you’re too young/old/pretty/bright/healthy/normal to have a chronic disorder? Have you been dismissed by doctors or disbelieved by loved ones? What if instead, there was someone who knew what you were going through and could teach you strategies for coping with chronic illness?This is not a false hope. You can turn pain into possibility with this life-changing book that can help everyone with elusive hypermobile Ehlers Danlos Syndrome (hEDS) – from those newly diagnosed to those who have suffered in silence for decades. Wherever you are on your journey navigating the complexities of chronic illness, you're not alone.In Holding It All Together When You’re Hypermobile, Christie Cox explores not only the physical effects of hypermobile Ehlers Danlos syndrome (a connective tissue disorder) but its emotional impact as well. As a fellow patient and medical rarity, known to doctors as zebras, she’s experienced her body’s betrayal and suffered through the myriad complications stemming from this disease. But she’s also found a way out from the depths of this life-altering disorder with wisdom you can turn into hope.As a self-advocacy guide, she offers practical, no-nonsense advice about living with chronic illness and the concrete steps you can take to achieve a new normal. In her book, you’ll discover…A healing prescription for the miracle of the modern mindsetA look at the latest scientific research on the edge of answersQ&A interviews with expert doctors and advocacy groupsGuidance for how to help loved ones better understand hEDSChristie’s own inspiring story of how she came to live her best lifeLessons, questions and quotes to inspire your search for answersHolding It All Together When You’re Hypermobile gives you the tools and resources you need to get back to living the life you want. Reading it will not only boost your confidence but empower you to change your life for the better.The book was a "joint effort" of patients, providers, and advocates coming together to help an underserved community. Participants who were interviewed and shared in the book include:EDS Medical SpecialistsDr. Sunil Patel, Neurosurgeon, Medical University of South Carolina (MUSC)Dr. Chip Norris, The Norris Lab researching hypermobile Ehlers Danlos Syndrome (hEDS), MUSCDr. Cortney Gensemer, Norris Lab (has hEDS) Dr. Amanda Miller, Progress Physical Therapy (speciality in hypermobility)Dr. Eric Singman, Professor of Ophthalmology, Neuro-ophthalmologist, University of Maryland Medical School and Former Chief of the Wilmer Eye Institute at Johns HopkinsIndustry Leading AdvocatesLauren Stiles, President and Co-Founder, Dysautonomia International Lara Bloom, President, The Ehlers Danlos Society Dorothy Poppe, President, Bobby Jones Chiari & Syringomyelia FoundationGwenn Herman, Clinical Director, US Pain FoundationTrisha Torrey, Founder, The Alliance of Professional Health AdvocatesCamille Schrier, Miss America 2020 (who has EDS)Ben Glass, Long-term disability lawyer, Ben Glass LawTo learn more about Christie’s book, visit www.holdingitalltogether.com.If you want to learn more about Christie’s advocacy work, visit www.journey2joyous.com
✔ Author(s): Christie Cox
✔ Title: Holding It All Together When You're Hypermobile: Achieve a Better Life Experience with EDS, POTS, and Joint Instability
✔ Rating : 4.8 out of 5 base on (37 reviews)
✔ ISBN-10: B0B7QGX5BD
✔ Language: English
✔ Format ebook: PDF, EPUB, Kindle, Audio, HTML and MOBI
✔ Device compatibles: Android, iOS, PC and Amazon Kindle
Readers' opinions about Holding It All Together When You're Hypermobile by Christie Cox
Aleena Tran
Follow the gripping tale of a detective unraveling a complex web of crime and corruption. The author's detailed writing and intricate plotting make for a suspenseful read. Each clue and revelation adds to the tension, keeping you on the edge of your seat. The characters are well-developed, with motivations that feel real and compelling. The climax delivers a satisfying resolution to the mystery. A must-read for thriller enthusiasts.
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Explore the transformative power of travel and adventure in this inspiring memoir. The author's vivid descriptions and engaging writing make you feel like you're right there with them. Each chapter offers new insights into different cultures and landscapes. The narrative is both informative and deeply personal, sharing the highs and lows of the journey. It's a story that inspires wanderlust and personal growth. Perfect for those who love travel stories.
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